<?xml version="1.0" encoding="UTF-8"?>
<!DOCTYPE article PUBLIC "-//NLM//DTD JATS (Z39.96) Journal Publishing DTD v1.3 20210610//EN" "JATS-journalpublishing1-3.dtd">
<article article-type="research-article" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="ru"><front><journal-meta><journal-id journal-id-type="publisher-id">mvjr</journal-id><journal-title-group><journal-title xml:lang="ru">Медицинский вестник Юга России</journal-title><trans-title-group xml:lang="en"><trans-title>Medical Herald of the South of Russia</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">2219-8075</issn><issn pub-type="epub">2618-7876</issn><publisher><publisher-name>The Rostov State Medical University</publisher-name></publisher></journal-meta><article-meta><article-id custom-type="elpub" pub-id-type="custom">mvjr-1261</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="ru"><subject>ОРИГИНАЛЬНЫЕ СТАТЬИ</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>ORIGINAL ARTICLES</subject></subj-group></article-categories><title-group><article-title>Проблемы и тревоги у родственников пациентов, обслуживаемых в болгарских хосписах</article-title><trans-title-group xml:lang="en"><trans-title>Problems and alarms of the patient’s relatives served in the bulgarian hospices</trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Александрова</surname><given-names>С. С.</given-names></name><name name-style="western" xml:lang="en"><surname>Alexandrova</surname><given-names>S. S.</given-names></name></name-alternatives><bio xml:lang="ru"><p>факультет общественного здоровья</p><p>Республика Болгария, 5800, г. Плевен, ул. Св. Климент Охридски, 1</p></bio><bio xml:lang="en"><p>Faculty of Public Health</p><p>1, Sv. Kliment Ohridski Str., 5800 Pleven, Bulgaria</p></bio><email xlink:type="simple">public_health@mu-pleven.bg</email><xref ref-type="aff" rid="aff-1"/></contrib><contrib contrib-type="author" corresp="yes"><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Грънчарова</surname><given-names>Г. Г.</given-names></name><name name-style="western" xml:lang="en"><surname>Grantcharova</surname><given-names>G. G.</given-names></name></name-alternatives><bio xml:lang="ru"><p>факультет общественного здоровья</p><p>Республика Болгария, 5800, г. Плевен, ул. Св. Климент Охридски, 1</p></bio><bio xml:lang="en"><p>Faculty of Public Health</p><p>1, Sv. Kliment Ohridski Str., 5800 Pleven, Bulgaria</p></bio><email xlink:type="simple">public_health@mu-pleven.bg</email><xref ref-type="aff" rid="aff-1"/></contrib></contrib-group><aff-alternatives id="aff-1"><aff xml:lang="ru"><institution>Медицинский университет г. Плевен</institution><country>Болгария</country></aff><aff xml:lang="en"><institution>The Pleven Medical University</institution><country>Bulgaria</country></aff></aff-alternatives><pub-date pub-type="collection"><year>2010</year></pub-date><pub-date pub-type="epub"><day>30</day><month>03</month><year>2010</year></pub-date><volume>0</volume><issue>1</issue><fpage>17</fpage><lpage>20</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Александрова С.С., Грънчарова Г.Г., 2010</copyright-statement><copyright-year>2010</copyright-year><copyright-holder xml:lang="ru">Александрова С.С., Грънчарова Г.Г.</copyright-holder><copyright-holder xml:lang="en">Alexandrova S.S., Grantcharova G.G.</copyright-holder><license xml:lang="ru" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>Данная работа распространяется под лицензией Creative Commons Attribution 4.0.</license-p></license><license xml:lang="en" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://www.medicalherald.ru/jour/article/view/1261">https://www.medicalherald.ru/jour/article/view/1261</self-uri><abstract><sec><title>Цель</title><p>Цель: анализ проблем и тревог у родственников пациентов, обслуживаемых в хосписах, и оказанных им услуг.</p></sec><sec><title>Материал и методы</title><p>Материал и методы: анкетирование 190 членов персонала, 216 родственников и близких пациентов, находившихся в 2008 году в 29 хосписах и 5 отделениях паллиативной помощи Болгарии.</p></sec><sec><title>Результаты</title><p>Результаты: в болгарских хосписах нет практики предоставления условий для пребывания родственников и поддержания контактов с близкими после смерти пациента. В качестве основных проблем родственники подчёркивают отсутствие свободного от работы члена семьи и невозможность получения продолжительного отпуска для обслуживания пациента. Основные тревоги связаны с состоянием больного и необходимыми мерами для его обслуживания.</p></sec><sec><title>Выводы</title><p>Выводы: необходимо широкое информирование населения о различных формах хосписной помощи, а так же повышенное внимание медицинского персонала к проблемам здоровья родственников.</p></sec></abstract><trans-abstract xml:lang="en"><sec><title>Purpose</title><p>Purpose: The analysis of problems and alarms of the patient’s relatives served in hospices and the services rendered to it.</p></sec><sec><title>Materials and Methods</title><p>Materials and Methods: Questioning of 190 members of the personnel, 216 relatives and the close patients who were in 29 hospices and 5 branches of the palliative help of Bulgaria in 2008.</p></sec><sec><title>Results</title><p>Results: There is no practice of granting conditions for stay of relatives and maintenance of contacts to relatives after death of the patient in the Bulgarian hospices. Relatives underline absence of free from work of a member of a family and impossibility of reception of long holiday for service of the patient as the basic problems. The basic alarms are connected with a condition of the patient and necessary measures for its service.</p></sec><sec><title>Summary</title><p>Summary: Wide informing of the population on various forms hospice’s help and a special attention of the medical personnel to problems of health of relatives are necessary.</p></sec></trans-abstract><kwd-group xml:lang="ru"><kwd>Болгария</kwd><kwd>хосписы</kwd><kwd>терминальные больные</kwd><kwd>проблемы и тревоги родственников</kwd></kwd-group><kwd-group xml:lang="en"><kwd>Bulgaria</kwd><kwd>hospices</kwd><kwd>terminal patients</kwd><kwd>problems and alarms of relatives</kwd></kwd-group></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Донка Паприкова - българската майка Тереза - почина в Деня на народните будители // Български фактор. – 2006. - №2. - http://www.bgfactor.org/index_.php?cm=11&amp;id=8987</mixed-citation><mixed-citation xml:lang="en">Донка Паприкова - българската майка Тереза - почина в Деня на народните будители // Български фактор. – 2006. - №2. - http://www.bgfactor.org/index_.php?cm=11&amp;id=8987</mixed-citation></citation-alternatives></ref><ref id="cit2"><label>2</label><citation-alternatives><mixed-citation xml:lang="ru">Закон за лечебните заведения. - ДВ, бр. 62 от 9.06.1999 г.</mixed-citation><mixed-citation xml:lang="en">Закон за лечебните заведения. - ДВ, бр. 62 от 9.06.1999 г.</mixed-citation></citation-alternatives></ref><ref id="cit3"><label>3</label><citation-alternatives><mixed-citation xml:lang="ru">Doyle, D., R. Woodruff. The IAHPC Manual of Palliative Care. - 2 nd edition. - IAHPC Press, 2004. – http://www.hospicecare.com/IAHPCmanual.htm</mixed-citation><mixed-citation xml:lang="en">Doyle, D., R. Woodruff. The IAHPC Manual of Palliative Care. - 2 nd edition. - IAHPC Press, 2004. – http://www.hospicecare.com/IAHPCmanual.htm</mixed-citation></citation-alternatives></ref><ref id="cit4"><label>4</label><citation-alternatives><mixed-citation xml:lang="ru">WHO. 1990. Definition of palliative care. – http://64.85.16.230/educate/content/elements/whodefinition.html</mixed-citation><mixed-citation xml:lang="en">WHO. 1990. Definition of palliative care. – http://64.85.16.230/educate/content/elements/whodefinition.html</mixed-citation></citation-alternatives></ref><ref id="cit5"><label>5</label><citation-alternatives><mixed-citation xml:lang="ru">Александрова С. Обща характеристика на развитието на хосписите в България // Социална медицина. - 2008, година XVI. - № 3. - с. 38-40</mixed-citation><mixed-citation xml:lang="en">Александрова С. Обща характеристика на развитието на хосписите в България // Социална медицина. - 2008, година XVI. - № 3. - с. 38-40</mixed-citation></citation-alternatives></ref><ref id="cit6"><label>6</label><citation-alternatives><mixed-citation xml:lang="ru">Национална здравно-осигурителна каса. Национален рамков договор 2008. Клинична пътека №297 – Палиативни грижи при онкологично болни. - http://www.nhif.bg</mixed-citation><mixed-citation xml:lang="en">Национална здравно-осигурителна каса. Национален рамков договор 2008. Клинична пътека №297 – Палиативни грижи при онкологично болни. - http://www.nhif.bg</mixed-citation></citation-alternatives></ref><ref id="cit7"><label>7</label><citation-alternatives><mixed-citation xml:lang="ru">Институт „Отворено общество”. Оценка на нуждите и нагласите към хосписите. София, Фондация „Отворено общество” и Алфа Ресъъч, 30.04.2003. - http://www.news.osf.bg/health_hopsices_2003_bg</mixed-citation><mixed-citation xml:lang="en">Институт „Отворено общество”. Оценка на нуждите и нагласите към хосписите. София, Фондация „Отворено общество” и Алфа Ресъъч, 30.04.2003. - http://www.news.osf.bg/health_hopsices_2003_bg</mixed-citation></citation-alternatives></ref><ref id="cit8"><label>8</label><citation-alternatives><mixed-citation xml:lang="ru">Covinsky, K. E., L. Goldman, E. F. Cook et al. The impact of serious illness on patients’ families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment // JAMA. – 1994. - №272. - P.1839-1844</mixed-citation><mixed-citation xml:lang="en">Covinsky, K. E., L. Goldman, E. F. Cook et al. The impact of serious illness on patients’ families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment // JAMA. – 1994. - №272. - P.1839-1844</mixed-citation></citation-alternatives></ref><ref id="cit9"><label>9</label><citation-alternatives><mixed-citation xml:lang="ru">Shiozaki, M., T. Morita, K. Hirai et al. Why are bereaved family members dissatisfied with specialized inpatient palliative care service? A nationwide qualitative study// Palliative Medicine. – 2005. - Vol. 19. - P. 319-327</mixed-citation><mixed-citation xml:lang="en">Shiozaki, M., T. Morita, K. Hirai et al. Why are bereaved family members dissatisfied with specialized inpatient palliative care service? A nationwide qualitative study// Palliative Medicine. – 2005. - Vol. 19. - P. 319-327</mixed-citation></citation-alternatives></ref><ref id="cit10"><label>10</label><citation-alternatives><mixed-citation xml:lang="ru">Иванова, Т., Н. Данова, Г. Казанджиев. Проблеми при оказването на палиативни грижи (резултати от пилотно проучване)// Социална медицина. – 2004. - №1. - C. 30-33</mixed-citation><mixed-citation xml:lang="en">Иванова, Т., Н. Данова, Г. Казанджиев. Проблеми при оказването на палиативни грижи (резултати от пилотно проучване)// Социална медицина. – 2004. - №1. - C. 30-33</mixed-citation></citation-alternatives></ref><ref id="cit11"><label>11</label><citation-alternatives><mixed-citation xml:lang="ru">Aoun, S. M., L. Kristjanson, D. Currow et al. Caregiving for the terminally ill: at what cost? // Palliative Medicine. – 2005. - Vol. 19. - P. 551-555</mixed-citation><mixed-citation xml:lang="en">Aoun, S. M., L. Kristjanson, D. Currow et al. Caregiving for the terminally ill: at what cost? // Palliative Medicine. – 2005. - Vol. 19. - P. 551-555</mixed-citation></citation-alternatives></ref><ref id="cit12"><label>12</label><citation-alternatives><mixed-citation xml:lang="ru">Кръстева, Н. Грижи за болни в стационара (хоспис). - В: Палиативни грижи. Ръководство за обучение на медицински сестри и акушерки. - Под ред. на доц. д-р Н. Кръстева. - Пловдив, ЛЕТЕРА, 2005. - C. 174-177</mixed-citation><mixed-citation xml:lang="en">Кръстева, Н. Грижи за болни в стационара (хоспис). - В: Палиативни грижи. Ръководство за обучение на медицински сестри и акушерки. - Под ред. на доц. д-р Н. Кръстева. - Пловдив, ЛЕТЕРА, 2005. - C. 174-177</mixed-citation></citation-alternatives></ref><ref id="cit13"><label>13</label><citation-alternatives><mixed-citation xml:lang="ru">Ferrario, R. S., V. Cardillo, F. Vicario et al. Advanced cancer at home: caregiving and bereavement. // Palliative Medicine. – 2004. - Vvol. 18, №2. - P. 129-136</mixed-citation><mixed-citation xml:lang="en">Ferrario, R. S., V. Cardillo, F. Vicario et al. Advanced cancer at home: caregiving and bereavement. // Palliative Medicine. – 2004. - Vvol. 18, №2. - P. 129-136</mixed-citation></citation-alternatives></ref><ref id="cit14"><label>14</label><citation-alternatives><mixed-citation xml:lang="ru">Ringdal, G.I., K. Ringdal, M.S. Jordhøy et al. Health-related quality of life (HRQOL) in family members of cancer victims: results from a longitudinal intervention study in Norway and Sweden // Palliative Medicine. – 2004. - Vol. 18, №2. - P. 108-120</mixed-citation><mixed-citation xml:lang="en">Ringdal, G.I., K. Ringdal, M.S. Jordhøy et al. Health-related quality of life (HRQOL) in family members of cancer victims: results from a longitudinal intervention study in Norway and Sweden // Palliative Medicine. – 2004. - Vol. 18, №2. - P. 108-120</mixed-citation></citation-alternatives></ref><ref id="cit15"><label>15</label><citation-alternatives><mixed-citation xml:lang="ru">Valdimarsdóttir, U., A.R. Helgason, C.J. Fürst et al. Long-term anxiety in widowhood: a nationwide follow-up // Palliative Medicine. – 2004. - Vol. 18, №5. - P. 432-443</mixed-citation><mixed-citation xml:lang="en">Valdimarsdóttir, U., A.R. Helgason, C.J. Fürst et al. Long-term anxiety in widowhood: a nationwide follow-up // Palliative Medicine. – 2004. - Vol. 18, №5. - P. 432-443</mixed-citation></citation-alternatives></ref></ref-list><fn-group><fn fn-type="conflict"><p>The authors declare that there are no conflicts of interest present.</p></fn></fn-group></back></article>
